Making dementia a European priority

Edinburgh, 3 June 2016

Heike von Lützau-Hohlbein, Chairperson@AlzheimerEurope

Glasgow Declaration

http://www.alzheimer-europe.org/Policy-in-Practice2/Glasgow-Declaration-2014 2

Glasgow DeclarationAE and members adopt Glasgow Declaration calling for:

• a rights based approach to dementia,

• development of national dementia strategies in all European countries,

• development of a European dementia strategy with increased funding for dementia research and improved exchange of good practices,

• greater global collaboration on dementia.3

Our campaign was supported by• 195 organisations from

32 countries

• 150 policy makers from 25 European countries

AND

• Over 11’600 European citizens

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National achievements

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EU achievements - Research• EUR 555 million funding on dementia under FP7

• EUR 170 million by Innovative Medicines Initiative– (PharmaCog, EMIF, AETIONOMY & EPAD)

• JPND – Joint Programme Neurodegenerative Disease Research– 28 participating countries including Canada, Albania, Canada, Israel,

Norway, Switzerland, Turkey)

– 15 ongoing projects (2011-2014) for EUR 68.5 million

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Luxembourg Presidency Conclusions 12/2015

• Call on European Commission and Member States– Recognise Governmental expert group on dementia

– Intensify research on dementia

– Identify and exchange good practices on prevention, timely diagnosis, post-diagnostic support, treatment and care, training of health professionals

– Improve epidemiological information on dementia

– Support non-governmental organisations in the field of dementia

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Dutch EU Presidency• Presidency Conference (9-10

May 2016)

• Living well with(out) dementia– Living well without dementia –

Prevention

– Living well with dementia at home

– Living well with dementia in care homes

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2nd Joint Action on Dementia• Duration:

– 2016-2018

• Priority actions:– Diagnosis and post-diagnostic support, crisis and care coordination,

residential care, dementia-friendly communities

• Countries involved:– Lead: United Kingdom (Scottish Government)

– Partners: Bulgaria, France, Greece, Italy, Netherlands, Norway, Portugal, Romania, Spain, United Kingdom (Department of Health)

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For more informationwww.alzheimer-europe.org